Understanding Dementia: Non Medical Perspectives

Understanding Dementia: Non Medical Perspectives

Understanding Dementia Tuesday 7th March 2017 Jane McKeown, Helen Crimlisk, friends & colleagues [email protected] Outline of Morning Understanding dementia through: Previous medical student placement experience Film / personal account Information and reflection Drama Dementia

Alzheimer s Disease Vascular Dementia Mixed Dementia Dementia with Lewy Bodies Frontotemporal Dementia Parkinson

s Dementia Other Dementias 62% 17% 10% 4% 2% 2%

3% Teds Challenge Student healthcare professionals need to understand what its like to live with dementia Medical student placement 2015 This event including Ted Talks film Ted Ted Talks 9 minute video Medical Student Placement Emily Herbert, Katie Mellor, Gemma Morgan, Anna Robson, Mary Tadross and

Lesley Tinkler. Focus Groups 4 Family carers 7 People living with dementia September 2015 What People with Dementia & Family Carers think Drs need to know about dementia. Remembering the PERSON behind the dementia

The importance of respecting the views of the person with dementia & the carer a careful balancing act Making allowances for challenges in short term memory, perception, communication Being aware of carer stress and the need to signpost carers to information resources and support Being compassionate, caring and friendly helping the person with dementia to feel safe and valued

Ive learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel Maya Angelou Medical Student Placement Recommendation Medical students should have opportunities for interaction with people having dementia in a social setting to increase understanding of

the challenges of living with dementia, promote positive attitudes and improve communication skills. Where to find more information www.alzheimers.org.uk Alzheimers Society National Website. Great resource about ALL dementias and links to local branches and support available Sheffield Alzheimers Society groups opportunities to volunteer: https://www.alzheimers.org.uk/info/20011/find_support_near_you#!/results/list?p=0&q=%7B%22place%22:%2 2sheffield%22,%22alz%22:false,% 22cat%22:125%7D

Darnall Dementia Group opportunities to volunteer in day centre: http://www.darnalldementiagroup.co.uk/blog/who-we-are/ Voice of Dementia Film 14 minute film made locally where people with dementia talk about their experiences of living with dementia and the importance of having their views listened to https:// www.youtube.com/watch?v=Aduw8dF2z-M Dementia Diaries A collection of short audio diary clips of people with dementia talking about their experiences http://dementiadiaries.org/

Engaging with people living with dementia through Twitter: @ken_kenc ;@mason4233; @KateSwaffer; @WendyPMitchell ; @agnes_houston Blogs: https://kateswaffer.com/; https ://whichmeamitoday.wordpress.com/blog/ Interesting documentary Alive Inside on use of music with people with dementia (needs to be viewed with a critical eye) https://www.youtube.com/watch?v=IaB5Egej0TQ Literature / film: Still Alice; Iris; Elizabeth is Missing; The Little Girl in the Radiator; The Notebook. Memory projects such as: http://www.liverpoolmuseums.org.uk/learning/projects/house-of-memories/about.aspx

Local groups Sheffield Dementia Involvement Group (SHINDIG) http://shsc.nhs.uk/about-us/get-involved/sheffield-dementia-involvement-group-shindig/; South Yorkshire Dementia Research Advisory Group (SYDEM RAG) http://sydemrag.group.shef.ac.uk/ University of Sheffield Dementia Life Story Group where students (we would welcome medical students) can develop their communication skills with people with dementia http:// cottomcommunicationclinic.group.shef.ac.uk/dementia.html Dementia role of psychiatrists with people with dementia [email protected]

Dementia Progressive loss of cognitive abilities causing deterioration in functioning Problems with memory, language, carrying out tasks, judgment, social skills, mood Epidemiology 1/20 at 65years rising to 1/5 at 80 years

Genes, lifestyle (smoking/alcohol), medical conditions (blood pressure, heart disease) Diagnosis Neurologists, Psychiatrists, general Practitioners Clinical diagnosis Supported by investigations dementia screen, assessment of cognitive functions, imaging Exclusion of treatable causes Common Sub-types Alzheimer's, Vascular, Lewy Body, Frontotemporal, Huntingtons, Jacob Creutzfeld, pseudodementia

Management: Old Age Psychiatrist-led teams Major and growing public health issue Complexity of interaction with physical, mental and social components Multidisciplinary approach Close collaboration with voluntary sector Complex medico-legal dilemmas re capacity, power of attorney, mental health act Community, inpatient and assertive home based treatment modalities Want to know more?

Dementia Friend / Volunteer / Information Train in psychiatry (old age psychiatry is a subspecialty at higher training level) @PeepSheff / @Eympsychiatry Phase 3a - placement Phase 3b Masterclass ILAs

SSC/elective contact [email protected] Student Associates Royal College of Psychiatry RCPsych Old Age Psychiatry Essay Prize 25 0 Welcome to Haylo Theatre Evaluation Thumbs up = Yes; Thumbs middle = Was OK Thumbs down = No Did you enjoy the session?

Did you think the session was of value to your learning as a medical student? Will you leave with a different perspective about dementia to that which you arrived with? Would you value future sessions delivered in this style?

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