Improving Support to Young Carers and their Families

Improving Support to Young Carers and their Families

Improving Support to Young Carers and their Families Harrogate March 25th 2009 The Bristol Approach Mike Nicholson, Area Manager, Children and Young Peoples Services Carol Watson, Service Manager, Health and Adult Social Care Services Un Ca iver s r Qu e Pr al H e o Fa al ity visi alth m Le ily o o i su a f L n

re ctiv ife: , C i ti ult es, ur e Universal Services Universal Health Care Provision The Web of Care Health Care Provision Benefits Childcare Parent- School Contacts Ex ten Fa ded mil y

Parents Whole Family led b a Dis rent Pa le eop P g ion rtin s i o v p o

Sup are Pr al C s n o t s nt Per ymen oyme l a py: p P a r t m e c e h Dire ss to tional T e

a acc Occup ions ptat a d a Respite Provision + Sitting Services Health C are Prov ision DLA Young er h t O ngs Carer Universal Educational li b i

S Disabled Provision Child vision py; Lo o r P e r a ng lth Ca physiother a P e H rov Ter ge; ated a c i

u d g S e n D la ho ision m C ime d t n e f i a L / h are Ov rt Br speec T; Hospice

/Re e e O r a h n t l k sid a ig h s; S he n O io is en v t

ro c P s cup ; g ittin ti a Out of School atio oin l g ; n Dedicate g a l o The d Educat ut ional Pro

r etc a p vision in y and out o f Mainstre am Services to Adults ? Services to Children The Bristol Approach 1. Set out a compelling vision 2. Focus on critical functions of each agency 3. Deliver strong and distributed leadership A Compelling Vision

The Bristol Vision To promote the welfare of young carers, disabled parents and their families and to prevent the need for young people to undertake inappropriate caring responsibility for any member of their family The Bristol Vision Aim By To ensure that professional workers consider the needs of the whole family when they make an assessment and provide services 1. Developing joint policy and protocols - Child and Adult Social Care whole family assessments - Integrated Carers Strategy 2. Providing Joint Training for professionals 3. Providing advice and guidance available for professionals

The Bristol Vision Aim To ensure that young carers and disabled parents are able to directly influence the design and delivery of services which aim to meet their needs By 1. Identifying young carers in the city through a city-wide access point and by sharing referral and information data 2. Engaging young carers and disabled parents in joint workshops and in policy and decision making bodies A focus on the critical functions of each agency The critical functions of each agency Aim

By To improve support to young carers, disabled parents and their families by developing a range of services provided by voluntary, private and mainstream agencies 1. Developing the voluntary sector role as change agents 2. Challenging main stream agencies to demonstrate that they are delivering their core business to young carers and disabled parents Deliver strong and distributed leadership Leadership Focus on priorities for delivery and hold leaders accountable: Aim To ensure that young carers dont miss out on their educational, health, leisure and career opportunities because of their caring responsibilities.

By 1. Designated professionals for young carers in every school and service setting 2. Annual reports from each extended school partnership on action plans for young carers 3. Youth Centre and Positive Activities for young carers in each locality 4. Common Assessment Framework and Lead Professionals to include a focus on unmet physical and mental health needs Leadership Hold on to each other through the confusion that arises from challenging traditional ways of working: Aim By To develop a collective collaborative identity 1. Creating stories which reinforce group identity 2. Emotion - having fun and getting passionate 3. Supporting those who find the new approaches challenging. They are experiencing the unravelling of old

certainties which of necessity brings a phase of personal Confusion before the new awareness resolves The Voluntary Sector as Change Agents The critical functions of each agency Aim By To improve support to young carers, disabled parents and their families by developing a range of services provided by voluntary, private and mainstream agencies 1. Developing the voluntary sector role as change agents 2. Challenging main stream agencies to demonstrate that they are delivering their core business to young carers and disabled parents The Bristol Challenge Young Carers and their families need to be able to access

the full range of services available to all Voluntary Sector has key essential expertise/legitimacy to provide advocacy on both an individual and strategic levels. Context Most money is locked up in mainstream provision and needs to be released for young carers Mainstream organisations have side stepped responsibility to deliver whole family approaches. Many services that young carers and their families need are of a statutory nature and we need to be held to account The Bristol Challenge Setting limitations on Vol Org role as sole provider of services e.g. Funding a mainstream young carers youth club, rather than additional funding to the Vol Sector? Issues Strategic influence is more difficult? Is it easier for Vol Sector projects to gain funding for service provision rather than for strategic influence Feel Good Factor? How will we maintain the Vol Sectors independence from

mainstream? Is it wise to challenge the people who are going to commission your services? Voluntary Sector capacity and capability The Bristol Challenge To create a shared vision for the long term To empower and support young carers to get in to the places where decisions are made Solution Mirror at a local level the way that national voluntary sector organisations influence policy making Developing mentoring and capacity building approach with full cost recovery and work towards longer term commissions e.g. 3/5 yrs Transparent and equitable expectations for Vol Sector and Mainstream in relation to delivering outcomes How can we challenge our own funders about their practice?

Will we lose funding to our own youth group?. A Story A Story Young Carers Project working with a 16 yr old Young Carer YCP identifies unmet need for young carer, disabled parent and a disabled sibling YC needs a carers assessment. Specialist skills YCP meet with glass walls from mainstream agencies and approach the Director of Adult Services Advocacy Meanwhile there is whole family training going on for Adult and Child Care practitioners and the Adult

Senior Practitioner working with the family carried out the assessment Strategic Influence Outcome of formal assessment notes impact of disabled child on both adult and young carer and tries to refer to Disabled Childrens Team who say they dont do carers assessments. Mainstream Barriers A Story Adult social worker refers problem to Carol and Mike and they call a meeting of professionals Mainstream own the problem All parties agree to whole family approach and offer: Additional time for young carer to spend with

separated father Young carer access to leisure activities personal assistant support for mother Weekend respite for disabled child Mainstream resources are unlocked Young Carers Project feedback that they are able to concentrate on their work with the young person and that the whole family approach has delivered positive outcomes for everyone in the family Positive feedback on outcomes is part of strategic influence

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